I been talking to a reunited high school friend of mine. We got on the topic of why I'm so unhealthy and what can be done about me losing wight and being back on track.

He told me to look up some info about my condition. I never knew youtube had topics on it. I never really thought to look.

I was sad looking at the videos. I know what my limits are. I have always been told, "its not as bad as your making it out to be. Your fine, everyone gets tired and feels stress."

I see these vids are much more then that. And I really do relate and have almost every symptom. And yes I have been diagnosed with CFS.

I have been told- "That I'm lazy, that I make excuses for my self, that I'm a hypochondriac, and so on."

No one understands.

At least now I see others with the same problems I feel a little better. I should drop one of these people a line.

Heres the sight for the "center of disease control"
for information on CFS.
http://www.cdc.gov/cfs/

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http://www.youtube.com/watch?v=oUcJad6w-XQ

I'm sorry KK.

This is the first time I've heard of this illness.

I'd recommend you try and forgive people who think that way that you are just lazy. From my objective view, just looking at the facts, it sounds like one big excuse to people who are lazy. I don't see it as that, but realize people may not understand.

Personally I have a disease called ADHD, short for Attenion Hyper Disorder. My attenion wavers in and out, it's tough to focus, and I can get very hyperactive.

If you have the strengtyh and courage to do it, try my technique.
1. Come to terms with what and who you are. You suffer from this disease, and there's no turning back. When you face that, you can move on.
2. Realize who you are and work around it.
I've trained myself to stay focused and take notes often, and even though my attenion wavers, I can catch it and stay on topic. This has been important for me to conquer this for college.

And, if possible, look on the bright side of things. Sure, I have ADHD, but I believe (and studies show) that people who have adhd are more creative, and it's made me who I am, like it or not.

Hope you're doing well.

(ps: Those youtube videos are kind of depressing. I think it would be wiser to get your information from a reliable source that gives you the facts and not add emotion. Try yahoo or a search engine.)

I have to agree with 1ce, those vids are kind of depressing.
I don't know what else to say...I fully agree with 1ce's technique.

Don't focus on your limits, focus on what you can do.
Be realistic, accept what and who you are, but just don't leave at that, look for a way to work around it.
I know it sounds kind of contradictory.. I don't really know how to explain it.

Yeah, your right. We all have problems. Being house bound is not easy. It's either too hot or too cold for me to go outside. And I get anxiety thinking about what people will think of me when I'm out doors. I only leave my home at night anymore. When I have the protection of TAI near me.

It's really sad.

Playing RPG games brings me back to when I was happy as a kid. I think thats why I like it so much. ^_^

I think every one has a touch of that now-a-days

Kittykicker,

It is not that I think that you are lazy, but what is wrong with being lazy?

Isn’t laziness by definition a lack of energy and mental will? I see laziness as having a bad stigma due to culture, not because there is anything wrong with it. If one has a spiritual disposition toward laziness due to their mindset and their bodily energy, is that inherently worse than any other mindset or bodily energy type, or just culturally worse?

So what I am getting at is that I assume that if you are not lazy, you have the will but not the bodily energy and that your chronic fatigue is preventing you from achieveing that bodily energy.

What I would like to know is what happens when your mental will takes over in rebellion against your body? Do you pass out? Does you body go into convulsions? Do you try to get up but can’t as though you are physically (not mentally or spiritually paralyzed)?

Some times I get so dizzy and tired I need to lay down. It mostly happens after I eat a meal. Sometimes when I lay down.. I do get paralyzed. I'm to weak to move. Then I fall into a deep sleep. Its kinda scary though.. I think to my self. If there where to be a fire, I would not be able to get up.

I found this forum that seems to be very help full. It's called Daily Strength. http://dailystrength.org/

People talk about all there health problems there. I even have a close friend of mine who gos to this sight. Its seems kinda cool.

HOLY CRAP!!
HOLD UP!!!
KK has Chronic Fatigue Syndrome?
I totally know how much it sucks. I have Fybromyalgia, a very similar condition both in symptoms and skepticism. It sucks living with conditions that have little or no way to diagnose other than to trust the patient(something doctors practice supprisingly little). My old pcp told me FM was just an excuse used by drug addicts trying to get pain medication. As a result, I refuse to take pain meds, despite having a medicine cabinet full of about 10 different prescription painkillers(come to think of it I should get rid of those).

When I get up in the morning, or more realistically the afternoon, I don't have the physical strength to get out of bed for about an hour. The pain in my knees and ribs sometimes gets so bad that I will bash my head against walls, trying to knock myself out.

I've been on and off anti-depressants for 3 years(BTW never go cold turkey off an anti-depressant, it clucks you up bad) and have a second condition called Nevoid Basal Cell Carcinoma Symdrome to top it all off.

I guess my advice is not to let the things people say get to you, and don't feel like you have to hold your goals at the same level as healthy people. Conditions like that don't really go away, but you can get used to it. It may become part of you, but don't let it BECOME you.

You should be the person who may or may not kick cats who also happens to CFS, not the person with CFS who may or may not also kick cats.

My mom and my sister both have chronic fatigue. It's not pretty. They're not able to do much before getting tired out. My sister used to come over and hang with me at my place regularly. She'd stay for hours on her days off, and we'd play video games and stuff. Now she's able to come over once in a while and hang for maybe an hour or two, then she gets tired out and has to go back home and rest.

My dad has fybromyalgia (sic?). That's not pretty either. He lives in constant pain.

I feel for ya, SSD. And you too, Kitty.

I suffer from paranoid schizophrenia, social anxiety, and chronic depression. While my energy level is usually pretty good, it doesn't really help much with racing thoughts, paranoia, and other stuff I have to live with. I've learned to live with it.

Edit:

Bo,

I wouldn't say that anyone who has chronic fatigue is lazy. There's a difference between genuine laziness and a condition that causes one to feel like crap.

it's not called Chronic Laziness Syndrome, though; it's called Chronic Fatigue Syndrome. and that's exactly what it is; fatigue.

my sister has it, and she's just very tired. a lot. and it makes her unhappy, understandably; she can't do ANYTHING; she's put her entire life on hold for it!

(But she doesn't go into convulsions. it might be worth checking Wikipedia or something before you ask questions like that of people, though. i was sort of like 'O_o', reading it. people might take it the wrong way)



as far as i can tell, in these situations, you can't force your body to do anything. rebellion is out of the question. sometimes you have a good day and that's ok, but if you're so depressed about the way you are you may well just stay indoors anyway; do nothing, feel crappy the next day. it's hard to feel good about life when you're missing so much of it.

most of the time, my sister stays in bed half the day. she never used to do that, it's sort of sad. she was meant to be going to Spain ;_;

http://www.chronicfatiguetreatments.com/forums/

iunno how useful this is, i found it momentarily interesting; it at least gives an insight into treatments and jargon and suchlike that are a regular part, as far as i can tell, of those guys lives. charcoal and suchlike.

Just so y'all know, I have a very close loved one who also has chronic fatigue.

My questions are questions not answers. The use of the word 'convulsions' comes from the way I intended it to mean. Does someone have enough mental control to make their body physically act and if so does the body behave inconsistent with the mental intention? Kittykicker has said that she thinks at times she couldn't get up even in a fire. I worry that someone who push themselves when fatigued could cluck up their body, one way being causing it to convulse.

I am not saying chronic fatigue is lazyness. I am asking what the difference is because it is not that I am unsumpathetic to people with chronic fatigue than y'all are, it is because I AM MORE SYMPATHETIC to lazy people than y'all are because I understand laziness to be a lack of physical AND mental energy and I don't simply trust societites tradtional or conventional dogma that all laziness is bad.

We are animals after all. Are you guys mad at gorillas for sitting around all day? Where do you think we come from?

EDIT: To pre-clarify, I am not saying gorillas are our direct common ancestors but rather that we are essentially similar apes. Where do you think we come from that we NECESSARILY have more control over our mental energy than we do our physical energy such that someone NECESSARILY has more control over being lazy than they have over being fatigued?

i apologise. i misunderstood you. from what you said, i reasoned that despite your qualifications in biology you were ignorant.

it was unfair.

...though while i understood what you were saying about your own meaning of laziness, and maybe i'd agree, i still wouldn't consider it optimal to use the word precisely because its multiple meanings get in the way of many of the issues around cfs sufferers. which is why i mentioned the actual name of the syndrome; because i figured it might be preferable for the purposes of discussion to stick with the less negative connotation-prone term 'fatigue'. *shrug* is all.

your point was a different one to the one i was considering in thinking so, admittedly.

It kinda makes me wonder..

The word syndrome..
Why is this problem listed at the
center of disease control?
Is CFS a disease?